Sweet Analise Rose's Journey with Arthrogryposis, Amyoplasia type

Thursday, August 11, 2011

Waking up


Posted by Abuelita Marti and Grandpa Rich: Keeping our family & friends updated on our Sweet Analise's journey with Arthrogryposis/ Amyoplasia at 5:23 PM
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I can do all things through Christ who strengthens me.

Philippians 4:13

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Abuelita Marti and Grandpa Rich: Keeping our family & friends updated on our Sweet Analise's journey with Arthrogryposis/ Amyoplasia
Sweet Analise Rose was born weighing 7 lbs. 14 oz. and measuring 20.5 inches. Although her daddy Erik and mommy Dawn were expecting a normal delivery, at birth Analise was unable to use her arms and hands (arthrogryposis), and also appeared to have club feet. On her second day of life she required emergency surgery when it was discovered that her ascending colon was not connected to her transverse colon. Analise is currently at home after having had 2 surgeries in her first 2 weeks of life!! She has begun the process of extensive evaluations and lengthy treatment for arthrogryposis. ♥♥♥♥♥♥♥♥♥♥♥♥♥♥ Erik and Dawn are both elementary school teachers and they have 4 other children, Kaley, Kyle, Kassandra, and Blake. ♥♥♥♥♥♥♥♥♥♥♥♥♥♥
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Links:

  • Living With Arthrogryposis-Tracey Schalk
  • Mikaela Frances Jane Blog including Videos with explanations on Arthrogryposis and Amyoplasia
  • Arthrogryposis: Tomorrow Is A Gift
  • Arthrogryposis Multiplex Congenita Support, Inc.
  • Sister Kaley's "Pray For Analise" Facebook Page
  • For Abby...Abby's blog-the little girl in the white dress on the AMC support website, and Ani Samargian's (The founder of the AMCSI) daughter
  • Laelia Sky: Laelia walks after 5 doctors say she would never walk
  • Jacqui's Preemie Pride-NICU friendly clothing for infants of all sizes

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      • Day 24: Analise goes to the pediatrician
      • Day 24: Encouraging and informative videos with ex...
      • Day 22-More visitors, video, and more pictures
      • Day 23: Message from Grandpa Rich to his work Fami...
      • Day 21: Getting better acquainted with Analise
      • Day 20: Analise gets visitors and an update on Eri...
      • Day 19: Family pictures
      • Day 19: Update from Erik
      • Day 18: Finally home!!! A note from Erik and Dawn:
      • Day 18: On my way home!!
      • Day 18: It is confirmed, this is my last day in th...
      • Day 17: I may be going home tomorrow!!
      • Day 17: Good Morning!! More good news!!
      • Message from Erik's Aunt Maria:
      • Day 16: I had a great day today!! Good Night!!
      • Day 16: Y'all must have been praying for that Orth...
      • Day 15: Finally, real food again!!
      • Day 15: Good morning, I am 2 weeks old today!!
      • Day 14-Off the ventilator, finally!!
      • Day 13-Wooo Hooo, Pooo!!!
      • Comment from Erik's Aunt Becky
      • Day 13-Analise's two bedrooms
      • Day 13-Good morning!
      • Day 12 update
      • Comment from Great Grandpa Joe
      • Day 12: Per the nurses: "Erik and Dawn have a feis...
      • Day 11-Praise God!! Analise came through the surg...
      • 7:55-they just took Sweet Analise into surgery
      • Still waiting, but..
      • Surgery postponed to sometime between 6-7pm
      • 4:45pm and still waiting for surgery!!
      • Surgery postponed to around 4pm today
      • Her first and hopefully last mohawk!!
      • Day 10 update-Surgery is scheduled for tomorrow at...
      • Here is a comment from Abuela, since she does not ...
      • Day 9-Surgery is scheduled for Thursday, August 18...
      • Day 8-Surgery scheduled for Thursday or possibly F...
      • Day 7 update
      • Auntie Amanda is organizing fundraiser for our Swe...
      • Good morning!! Look, nothing on my head except my ...
      • Bye Bye IV's and oxygen...I'm done with all that s...
      • Here is a new blog that Erik found about another c...
      • What a great visit with Sweet Analise!!
      • Update 8/12 afternoon
      • Mommy's first bottle feeding with breast milk--Kyl...
      • Daddy gets his chance to hold Analise!!
      • Mommy finally gets to hold Sweet Analise, yeah!
      • Website written by a 23 year old documenting her l...
      • Dawn's first feeding
      • Mommy and Daddy loving me up!
      • With Mommy
      • Waking up
      • GREAT NEWS!!! PRAISE GOD!!!
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